Co-Founder / Team Leader

PATRICIA JOHNSON

After chasing symptoms for five years I was diagnosed with MS in 1990 at the age of 38.  It was a relief  to have my issues finally identified although horrific at the same time to know I had lesions on my brain and not know what that meant.  I cried for an hour in the Neurologists office but had hope when he said he felt within five years there would be a cure  based on research in the pipeline.  Now 26 years later I am still hopeful for that cure yet my optimism has changed.

In 1983 I suffered a concussion & other injuries in a car accident. Thereafter, I healed but dragged my previously injured left foot when I walked or ran any distance.  In 1985 I got up from the flu barely able to walk.  I went to a chiropractor & my function returned except for that darn foot drag & a slight limp.  The limp continued beyond my MS diagnosis for years & I used a cane until progression necessitated  the switch to using arm crutches then a walker and eventually a scooter.  To this day I wonder how those car accident injuries morphed into MS since those injuries are where my MS symptoms appear.

Throughout this journey I lost the hearing in one ear for a few weeks but otherwise my symptoms exacerbated during times of extreme stress, fatigue or heat.  I continued working outside the home until 2000 & worked a home based business until 2012.  Along the way I endured the nausea from  Betaseron for 5 years, several years later I tolerated Avonex nausea for 5 years & switched to Tysabri for 3 years.  Regardless of whether or not I was on a drug my MS progressed so I decided to stop the drugs & instead focus on wellbeing through other means.  In 2010 I had the CCSVI procedure & the results were remarkable albeit only lasting several months. What this showed me was that it is conceivable for the body to function symptom free.  I now  pour over as much information as I can seeking the ever elusive answer to the MS puzzle.

 

The things I feel confident about are that exercise & a good diet are crucial.  A good attitude & social contact is healthy.  Education is important in order to make informed decisions for ourselves. There are many things out there bringing relief & improved function but we need to  be our own researcher & advocate to find them.  We are all different.

 

What Does Hope Mean to You?

To me, hope is a desire for improved health and reversal of MS symptoms.

Diagnosed in 1990

© 2004-2020 HOPE 4 MS. All rights reserved.

** This website is provided as a source of information for individuals dealing with multiple sclerosis. We present what we consider to be valuable information and assume no liability for the use of any product, technique or service mentioned. You should not use the information contained herein for diagnosing a health or fitness problem or disease. For specific information and advice, recommendations or prescritpion, consult a qualified physician.